WHO IS MARCELLO?

Marcello is a vibrant 13 year old boy with LCHAD, a rare genetic fatty oxidation metabolic disorder. The deficiency creates multiple health issues, from mild to very serious, including fatality if not treated properly. Marcello has faced many obstacles as a result of his disorder and will continue to do so as he gets older. He spent the first six years of his life in and out of the hospital, managing the side effects of his disorder. Despite all he has been through in life, he is such an amazing kid and enjoys life to the fullest! Sadly, one of the biggest side effects of this disorder is he will eventually lose his vision from retinitis pigmentosa and macular degeneration.  Marcello's story is the inspiration behind the foundation.